I know from experience how important it is to talk openly about hemophilia, which is why Landon and I are sharing our story.

We’ve been fortunate to have an excellent healthcare team since Landon’s initial bleed at 6 days old, and they guided me through his on demand treatments while he was an infant. We had some emergencies, like his first joint bleed when he was 10 months old. I couldn’t infuse him myself yet, and his doctors suggested that we begin a prophy regimen. We live an hour and 40 minutes from the treatment center, so I was spending so much time in the car driving Landon to his twice-a-week infusions.

A few years later, I talked with his doctor about ALPROLIX^®. She explained the benefits and risks, such as the most common side effects, including allergic reactions, headache, abnormal sensation in the mouth, and pain in the side with blood in the urine, which may be a sign of clot formation in the urinary collecting system. After doing my own research and talking with the doctor again, we decided to move forward with ALPROLIX because I wanted a treatment that would give him more time between infusions and increased bleed protection.

Landon’s first ALPROLIX treatment was on his birthday. When we went into the room for Landon’s first infusion, it was full of balloons, with his favorite cartoons playing on the TV. It was a great start, and Landon has been using ALPROLIX for over a decade. Landon started out with once-weekly infusions, and for the last 6 years, he’s been infusing once every 2 weeks.

I’m thankful ALPROLIX is working for Landon and protecting him against bleeds. I have more peace of mind knowing that he has that protection, so that we can focus on doing the things that we love.

This is a personal account of an ALPROLIX Peer, reflecting the real-life experiences of a person diagnosed with hemophilia B who has been prescribed ALPROLIX. However, individual experiences may vary. Patient stories are not necessarily representative of what another person using ALPROLIX may experience. ALPROLIX Peers have been compensated for sharing their stories. For medical advice, please consult your own healthcare provider.